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Telling Genes:

The Story of Genetic Counseling in America

ISBN-13: 9781421406688
Publisher: JOHNS HOPKINS UNIVERSITY PRESS
Imprint: JOHNS HOPKINS UNIVERSITY PRESS
By Alexandra Minna Stern
Price: AUD $64.99
Stock: 0 in stock
Availability: This book is temporarily out of stock, order will be despatched as soon as fresh stock is received.
Local release date: 14/01/2013
Format: Paperback 248 pages Weight: 0g
Categories: History of medicine [MBX]

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For sixty years genetic counselors have served as the messengers of important information about the risks, realities, and perceptions of genetic conditions. More than 2,500 certified genetic counselors in the United States work in clinics, community and teaching hospitals, public health departments, private biotech companies, and universities. Telling Genes considers the purpose of genetic counseling for twenty-first century families and society and places the field into its historical context.Genetic counselors educate physicians, scientific researchers, and prospective parents about the role of genetics in inherited disease. They are responsible for reliably translating test results and technical data for a diverse clientele, using scientific acumen and human empathy to help people make informed decisions about genomic medicine.Alexandra Minna Stern traces the development of genetic counseling from the eugenics movement of the early twentieth century to the current era of human genomics. Drawing from archival records, patient files, and oral histories, Stern presents the fascinating story of the growth of genetic counseling practices, principles, and professionals.

Acknowledgments
Introduction
1. History: Genetic Counseling Develops
2. Genetic Risk: An Evolving Calculus
3. Race: Tense and Troubled Relations
4. Disability: The Dynamics of Difference
5. Women: Transforming Genetic Counseling
6. Ethics: Shades of Gray in Genetic Counseling
7. Prenatal Diagnosis: The Handmaiden of Contemporary Genetic Counseling
Conclusion
Appendixes
A. Archival Materials Consulted
B. Interviewees
C. Master's Degree Genetic Counseling Programs in North America
Notes
Index

""In this very readable exploration of the origins of genetic counseling, Alexandra Minna Stern makes an important contribution both to our understanding of the history of American medicine and also to the histories of eugenics and medical genetics. Using an accessible narrative style, Stern knits together archival materials, oral histories with key figures, medical publications, and photographs.""

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Telling Genes:

The Story of Genetic Counseling in America