A comprehensive revision of a critical resource for school-based professionals tasked with providing care for children's disability conditions, their social-emotional health, and their educational needs. The volume of information on child and adolescent physical and behavioral health problems has grown and become more complex over the last several decades, making it very difficult for individual providers to have all the knowledge needed to diagnose and manage all physical and behavioral health conditions. Now in its second edition, Health-Related Disorders in Children and Adolescents discusses the educational, psychological, and behavioral challenges involved in coordinating care for the more than 15 million school-aged children experiencing medical conditions. With chapters written by experts from a range of disciplines in psychology and featuring the latest research, the work is now focused on those conditions that occur in at least 1 in 25,000 children and is organized around major body systems. Each chapter systematically covers etiology, symptoms, outcomes, and interventions. This edition also emphasizes care coordination among parents and medical, psychological, and educational professionals.
Michelle M. Perfect, PhD, is a professor in the School Psychology Program at the University of Arizona. Her research focuses on the intersection of physical and mental health, with a particular focus on the impact of sleep and pediatric chronic illnesses on school, mental health, and neurobehavioral functioning. Dr. Perfect also engages in training and service activities that prepare school psychologists to work with multiple systems of care (school, family, hospitals, child welfare) to address the educational and mental health needs of youth and families, particularly those from marginalized populations and/or have experienced adversities. Cynthia A. Riccio, PhD, is Professor Emerita in the School Psychology Program at Texas A&M University and at the Texas A&M Institute of Neuroscience (TAMIN). Dr. Riccio's primary research interests include learning disabilities, ADHD, neuropsychology, and individual assessment. She retired in August 2020. Melissa A. Bray, PhD, is a professor and the director of the School Psychology program within the Neag School of Education at the University of Connecticut. She is licensed as a psychologist in the State of Connecticut, holds national certification in school psychology, state certification in school psychology, and licensure in speech language pathology. Her research interests are in the area of interventions for communication disorders--mainly stuttering and selective mutism--mind body health, integrated behavioral health care, and physical health and wellness, especially in the areas of asthma and cancer.
Preface LeAdelle Phelps as transcribed by Melissa Bray I. Introduction Chapter 1: Introduction to the Second Edition Michelle M. Perfect, Cynthia A. Riccio & Melissa A. Bray Chapter 2: Importance of Coordinated Care in Meeting the Needs of Children and Families Susan G. Forman, Melissa C. Fleuhr, Sade S. Porter & Jeffrey D. Shahidullah II. Blood, Cardiovascular and Circulatory System Disorders Chapter 3: Overview of Circulatory System Disorders Jeff Bostwick, Clark R. Bray & Heather Kwolek Chapter 4: Cardiac Disorders Stewart W. Ehly & Noel Estrada-Hernandez Chapter 5: Childhood Leukemia Lea A. Theodore, Karen Cross, Lauren Gammie, Marlena Minkos, Danielle Stern & Alyssa Perri Chapter 6: 22q11.2 Deletion Syndrome or DiGeorge Syndrome Priscilla H. Duong & Hiroko Tanaka Chapter 7: Hemophilia Mickey Randolph & Ethan J. Schilling Chapter 8: Human Immunodeficiency Virus Tiffany Chenneville & Kamesha Gabbidon Chapter 9: Noonan Syndrome Suzanne Margiano, Lorette McWilliams, Johana deLeyer-Tiarks & Carissa Scogin Chapter 10: Sickle Cell and other Anemias Linda W. Morse, Melanie C. Morse & Sarah E. Bills III. Central Nervous System Disorders Chapter 11: Overview of CNS Disorders Ivette Merced Chapter 12: Adrenoleukodystrophy Harvey Switzky, James P. Van Haneghan & Abigail Baxter Chapter 13: Agenesis of the Corpus Callosum Krystal T. Simmons, Bianca S. Watkins & Sherine Presley Chapter 14: Angelman Syndrome Sara S. Frye & Allison Fairchild Chapter 15: Autism Christine L. Cole & Alana Telesford Chapter 16: Cerebral Palsy Sai Sudha Aravala, Adeline Bray & Karen Cross Chapter 17: Cri-du-Chat Phyllis S. Ohr Chapter 18: Down Syndrome Nicholas W. Gelbar Chapter 19: Epilepsy Megan Aros-O'Malley, David L. Wodrich & Randa Jarrar Chapter 20: Hereditary Ataxia Taylor-Kristen Myers Chapter 21: Mitochondrial Disorders Cynthia K. Lang, Alyssa A. Gonzalez & Cynthia A. Riccio Chapter 22: PANDAS/PANS Kandace M. Hoppin & Patricia Rice Doran Chapter 23: Prader-Willi Syndrome Moira Wendel & Julia Ogg Chapter 24: Rett Syndrome Nicholas W. Gelbar Chapter 25: Spina Bifida Fay Roseman & Agnes Shine Chapter 26: Williams Syndrome Carly B. Gilson, Terry Monkaba, Maria Mello & Robin Pegg IV. Digestive System Disorders Chapter 27: Overview of Digestive System Disorders Cheryl Maykel, Lauren Gammie & Johanna deLeyer-Tiarks Chapter 28: Celiac Disease Emily M. Jimenez, Daphne J. Hill & Anita Sohn McCormick Chapter 29: Hirschsprung's Disease Craig L. Frisby Chapter 30: Inflammatory Bowel Disease: Chrohn's Disease and Ulcerative Colitis Stevie Puckett-Perez & Chelsea Vaughan Chapter 31: Phenylketonuria Julia Ogg & Daniel V. Strissel V. Endocrine & Reproductive System Disorders Chapter 32: Overview of Endocrine & Reproductive System Disorders Cindy Chin, Graciela E. Silva & Mark Wheeler Chapter 33: Conditions Associated with Growth David E. Sandberg & Kristina I. Suorsa Johnson Chapter 34: Congenital Adrenal Hyperplasia Allison Fairchild & Madison Preece Chapter 35: Klinefelter Syndrome Kristina I. Suorsa Johnson & David E. Sandberg Chapter 36: Thyroid Disorders Samantha Coyle & Brooke Stettler Chapter 37: Turner Syndrome Kristina I. Suorsa Johnson & David E. Sandberg Chapter 38: Type 1 Diabetes Natalie A. Larez & Michelle M. Perfect Chapter 39: Type 2 Diabetes Stihlyn Chamberlain & Savina Maria Bello VI. Respiratory System Disorders Chapter 40: Overview of Respiratory System Disorders Melissa A. Bray, Cheryl Maykel, Lea Theodore & Justina Petrullo Chapter 41: Asthma Cheryl Maykel, Melissa A. Bray, Meghan Long & Lauren Gammie Chapter 42: Cystic Fibrosis Jeanette Smith Phoenix & Keiko Aoyagi Chapter 43: Cytomegalovirus Maryann Santos Chapter 44: Sarcoidosis Adeline Bray, Sar Aravala & Craig Schramm VII. Musculoskeletal Disorders Chapter 45: Overview of Musculoskeletal Disorders Sai Aravala, Adeline Bray, Evagelia B. Lolis & Alyssa M. Bunyea Chapter 46: Achondroplasia Cynthia A. Riccio & Anita Sohn McCormick Chapter 47: Charcot Marie Tooth Disease Jennifer Tucker & Meghan Nickels Chapter 48: Juvenile Idiopathic Arthritis Rebecca J. Tipton & Eric L. Robinson Chapter 49: Marfan Syndrome Brittany A. Dale & David E. McIntosh Chapter 50: Muscular Dystrophies Jennifer Tucker & Megan Jeune Chapter 51: Osteogenesis Imperfecta Kelly N. Clark & Christine K. Malecki Chapter 52: Sotos Syndrome Kari A. Sassu, Aarti P. Bellara, Michelle Levine-Schmitt, Emily L. Winter, Katherine R. Nelson, Alyssa M. Bunyea, Cindy C. Labbe, Elena S. Volfinzon, & Adeline M. Bray VIII. Mixed/Multisystem Disorders Chapter 53: Overview of Multisystem Disorders Cynthia A. Riccio Chapter 54: CHARGE Syndrome Timothy S. Hartshorne & Lillian J. Slavin Chapter 55: Cornelia de Lange Syndrome Emily M. Jimenez & Cynthia A. Riccio Chapter 56: Fragile X Syndrome Lea A. Theodore, Adeline M. Bray, Lydia Rumpf, Sai S. Aravala & Justina Pertrullo Chapter 57: Lysosomal Storage Disorders Allison Fairchild & Melina Islas Chapter 58: Mucopolysacharide Disorders Carolyn Tureaud, Taylor Kristen-Myers & Michelle Perfect Chapter 59: Neurofibromatosis Elizabeth Perdue, Lindsey Carnes & Cynthia A. Riccio Chapter 60: Pediatric Cancer Lea A. Theodore, Melissa A. Bray, Lauren Gammie, Cassandra Odell, Larissa Hoefler, Kerrilyn Surdi & Lydia Rumpf Chapter 61: Smith-Magenis Syndrome James P. Van Haneghan, Abigail Baxter & Harvey N. Switzky Chapter 62: Sturge-Weber Syndrome Emily M. Jimenez & George W. Hynd Chapter 63: Tuberous Sclerosis Complex Cynthia A. Riccio & Huilin Linda Sun Chapter 64: Conclusion: Looking Back and Forward Melissa A. Bray, Michelle M. Perfect & Cynthia A. Riccio
