Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about.
Written from a dual perspective - that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared.
Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery.
Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects.
Introduction. 1. Why is this book needed? 2. Why do we struggle to accept that long-term effects exist? 3. Dread of getting more cancer. 4. More long-term effects - physical and emotional. 5. Relationships and Cancer. 6. Work and Cancer. 7. Interviews with a Nurse and Three Doctors. 8. If only: The experience after treatment for male cancers (by Simon Crompton). 9. The Way Forward. Glossary
The commitment, courage and insight of Ms Galgut displayed in this comprehensive account of the challenges of cancer survivorship 'from the front line' is both remarkable and inspiring.As one who has tried to support and campaign for hundreds of patients in these situations over thirty years I know that she speaks from the heart about what we all think, feel and endure.We can sincerely empathise with those living with fear and isolation in a world which says, 'Be glad you are alive'.This book needs wide distribution to sufferers in need of comfort and support. And -just as importantly - to medical professionals as a plea to listen and try to understand.
