Jane Alison Sherwins honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA). After years of misdiagnosis, Janes daughter, Mollie, was diagnosed with PDA at the age of seven, and we follow her experiences pre and post diagnosis to age 10 as she attends school, interacts with the outside world and approaches adolescence. Throughout, Jane provides commentary on her daughters behaviour and the impact it has on her family, explaining the why of PDA traits, including the need for control, meltdowns, obsessive behaviour and sensory issues. She reveals the strategies that have worked for Mollie and provides essential advice and information on obtaining a diagnosis and raising awareness of PDA. The book also includes an interview with Mollie. Full of advice and support, and with a focus on understanding the child and how he or she sees the world, this book will be of immeasurable value to the parents and families of children with PDA as well as the professionals working with them, particularly teachers and teaching assistants, SEN co-ordinators, psychologists, outreach workers and social workers.
Introduction and Foreword by Phil Christie. I. The Early Years. 1. The Key Diagnostic Features of PDA. 2. The Early Warning Signs. 3. Nursery School Begins and Boom! II. The School Years. 4. Things Go from Bad to Worse. 5. A New School and A New Start. 6. An End to Formal Education. III. Understanding Mollies PDA Behaviours. 7. Difficulties with Social Understanding and Verbal Communication. 8. Routine, Predictability, Fantasy and Obsessions. 9. Summing Up the Difficulties and Empathising with Mollie. IV. Breaking the PDA Cycle. 10. The Cycle of Demand, Control, Avoidance and Meltdown. 11. Strategies that Help Mollie Feel in Control. 12. Strategies for Other Areas of Difficulty Sensory Issues, Sleep, Transitions, Obsessions, Sexualised Behaviour and More. 13. Getting Schooling Right. 14. PDA Plus. V. Learning to Interact in the Neurotypical World. 15. Mollie Dips Her Toes in the Outside World. 16. Strategies for Teaching the Social Laws and Customs Outside of the Family. VI. Entering the Adolescent Years and Looking to Adulthood. 17. Periods and Puberty. 18. Children with PDA Grow into Adults with PDA. VII. How PDA Has Affected Our Family. 19. Family Dynamics. 20. How Living with PDA Affected My Own Mental Health. 21. Supporting a Family Living with PDA. VIII. Diagnosis. 22. Why Recognition and Diagnosis is So Important. 23. Navigating the Bumpy and Winding Road to Diagnosis. IX. Final Thoughts. 24. The Funny and Endearing Side of PDA. 25. An Interview with Mollie. 26. Our Current Situation and My Hopes for the Future. Appendices. I. A Complete Profile of Mollies Behaviours and Traits. II. Frequently Asked Questions. III. Useful Resources. References.
Sherwin comes to this subject as a parent as opposed to a professional and her knowledge is self-taught as she came to terms with her daughters difficulties... (The author) outlines the strategies that she has developed to cope with Mollies meltdowns and anxieties and her huge issues with sleep... Sherwin writes frankly about how Mollies PDA has affected her personally and her family and this book is a moving and informative guide.
