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Nothing about us, without us!: 20 years of dementia advocacy

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Christine Bryden has worked in the pharmaceutical industry and as a senior executive in the Australian Prime Minister's Department. Following her diagnosis with Alzheimer's Disease in 1995, she has been instrumental in setting up local support groups for people with dementia and has addressed national and international conferences. In 2003 she was the first person with dementia to be elected to the Board of Alzheimer's Disease International. Her first book Who will I be when I die? was published in 1998 and has been translated into several languages. She lives in Brisbane, Australia.
Introduction. 1. Dementia diagnosis - pointing the bone. 2. Diagnosis, drugs and determination. 3. Insider's view of dementia. 4. Dementia diagnosis from an 'insider's' perspective. 5. Dancing with dementia. 6.Nothing about us, without us! 7. A bumpy ride. 8. The support that I need. 9. Stigma and fear. 10. I'm still here! 11. Coming out of the shadow . 12. A decade of change. 13. Lisa and I. 14. Dementia prison. 15. Living life to the full. 16. Mind your language - getting it right! 17. There has to be a better w ay!18. Come dance with me! 19. Dementia - an interesting ride! 20. Who was I? Who am I now ? Who will I be when I die? 21. Pastoral care of people with dementia.
Christine Bryden, a person of great strength, a survivor with an indestructible spirit, a person living with dementia, invites us to ""aspire to a new paradigm of dementia survival with dignity"". The book is a chronicle of her life as an advocate who fights each day to retain her dignity and that of all people living with dementia. It is a testament of her consuming passion, to never let go, search for what remains and use it to the maximum. A compelling book for those who seek to better understand what it is like to walk in the shoes of a person with dementia.
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