The Handbook of Ethical Research with Ethnocultural Populations and Communities

Joseph E. Trimble, a distinguished university professor and professor of psychology at Western Washington University, is a president's professor at the Center for Alaska Native Health Research at the University of Alaska Fairbanks. He has written over 140 publications on multicultural topics in psychology, including 19 books. Trimble's excellence in teaching and research awards for his work in the field of multicultural psychology include: the Janet E. Helms Award for Mentoring and Scholarship in Professional Psychology; the Distinguished Elder Award from the National Multicultural Conference and Summit; the Henry Tomes Award for Distinguished Contributions to the Advancement of Ethnic Minority Psychology; the International Lifetime Achievement Award for Multicultural and Diversity Counseling awarded by the University of Toronto's Ontario Institute for Studies in Education; the 2013 Francis J. Bonner, MD Award from the Department of Psychiatry at Massachusetts General Hospital; and the 2013 Elizabeth Hurlock Beckman Award. Celia B. Fisher, PhD, Director of the Fordham University Center for Ethics Education and Professor of Psychology, holds the Marie Ward Doty University Chair in Ethics and directs the NIDA funded HIV/Drug Abuse Prevention Research Ethics Institute. Dr. Fisher served as a member of the American Psychological Association's (APA's) Ethic Committee and later Chaired the APA Ethics Code Task Force responsible for the 2002 revision of the APA Ethical Principles of Psychologists and Code of Conduct that, with the addition of language on human rights amended in 2010 and 2017, is today's current code. She has also Chaired the Ethics Code Revision Task Forces for the American Public Health Association and for the Society for Research in Child Development (SRCD). In addition, Dr. Fisher has served as Chair of the Environmental Protection Agency's Human Subjects Research Board, the New York State Board for Licensure in Psychology, the National Task Force on Applied Developmental Science, and the SRCD Common Rule Task Force charged with representing the voice of developmental scientists during the revision of federal regulations governing the protection of human participants in research. Dr. Fisher has also contributed to the Institute of Medicine (IOM) Committee on Clinical Research Involving Children, the IOM Committee on Ethical Review and Oversight Issues in Research Involving Standard of Care Interventions, the National Academies' Committee on Revisions to the Common Rule for the Protection of Human Subjects in Research in the Behavioral and Social Sciences, and the Department of Health and Human Services Secretary's Advisory Committee on Human Research Protections (SACHRP), for which she cochaired the SACHRP Subcommittee on Research Involving Children. She served on the APA/SAMSHA Consensus Panel on Ending Conversion Therapy: Supporting and Affirming LGBTQ Youth, the Data Safety Monitoring Boards for the National Institute of Mental Health (NIMH) and for the National Institute for Drug Abuse (NIDA), and the External Advisory Board for the NIH Adolescent Brain and Cognitive Development Study. She also served as the founding director of the Fordham University Doctoral Program in Applied Developmental Psychology and as cofounding editor of the journal Applied Developmental Science. Dr. Fisher is the recipient of the 2010 Lifetime Achievement Award for Excellence in Human Research Protection and a Fellow of the American Association for the Advancement of Science. Dr. Fisher has written commissioned papers on research ethics with mentally impaired and vulnerable populations for President Clinton's National Bioethics Advisory Commission, for NIMH on points for consideration in the ethical conduct of suicide research and research involving children and adolescents, and for the National Institute on Drug Abuse (NIDA) on HIV education, treatment, and referrals for research participants. She cochaired the national conference on Research Ethics for Mental Health Science Involving Ethnic Minority Children and Youth (American Psychologist, December 2002), cosponsored by the APA and NIMH, and the first National Conference on Graduate Education in Applied Developmental Science (Journal of Applied Developmental Psychology, 1993). Dr. Fisher has coedited 8 books and authored more than 300 scholarly chapters and empirical articles on professional and research ethics, with special emphasis on the rights of racial/ethnic minorities, sexual- and gender-minority youth, children and adults with impaired decision making, and socially marginalized populations within and outside the United States. With support from the National Institute for Child Health and Human Development (NICHD), she has studied how to assess and enhance the abilities of adults with developmental disabilities to consent to research and developed research ethics-training modules for American Indian and Native Alaskan community-engaged researchers. With funding from the National Science Foundation (NSF) and the National Institutes of Health (NIH), she developed widely used research ethics instructional materials for undergraduates, graduate students, senior scientists, and institutional review boards. With support from the NSF, NIDA, and the National Center for Research Resources (NCRR), she has partnered with culturally diverse community members and frontline researchers conducting community-based research to understand their perspectives on the ethics of adolescent risk research and research involving adults involved in street drug use and related HIV risk. With support from the National Institute of Neurological Disorders and Stroke (NINDS) and the Office of Research Integrity, she has developed and validated measures assessing mentoring behaviors and departmental climates nurturing the responsible conduct of research in psychology graduate programs. Her research on intervention programs to reduce college students' drinking behaviors has been supported by the Department of Education and the National Institute on Alcohol Abuse and Alcoholism (NIAAA) and a recent grant from the National Institute for Minority Health Disparities grant examined ethical issues in HIV research involving sexual and gender minority youth. In response to the COVID-19 pandemic, Dr. Fisher conducted a large national study on the effects of Coronavirus victimization distress and Coronavirus racial bias on the mental health of AIAN, Asian, Black, and Latinx young adults.

Acknowledgements Preface - Richard Suinn Introduction: Our Shared Journey: Lessons from the Past to Protect the Future - Joseph E. Trimble and Celia B. Fisher PART I. FOUNDATIONS OF ETHNOCULTURAL RESEARCH AND RESEARCH ETHICS 1. A Goodness-of-Fit Ethic for Multicultural Research - Celia B. Fisher and Kathleen Ragsdale 2. Scientist-Community Collaborations: A Dynamic Tension Between Rights and Responsibilities - John Fantuzzo, Christine McWayne, and Stephanie Childs 3. First, Do No Harm: Culturally Centered Measurement for Early Intervention - Nancy Busch-Rossnagel PART II. RESEARCH ETHICS CHALLENGES INVOLVING DIVERSE ETHNOCULTURAL GROUPS 4. Addressing Health Disparities Through Relational Ethics: An Approach to Increasing African American Participation in Biomedical and Health Research - Scyatta A. Wallace 5. In Their Own Voices: American Indian Decisions to Participate in Health Research - Tim D. Noe, Spero M. Manson, Calvin Croy, Helen McGough, Jeffrey A. Henderson, and Dedra S. Buchwald 6. "I Wonder, Why Would You Do It That Way?" Ethical Dilemmas in Doing Participatory Research With Alaska Native Communities - Gerald V. Mohatt and Lisa Thomas 7. Ethical Conduct of Research With Asian and Pacific Islander American Populations - Jean Lau Chin, Jeffery Scott Mio, and Gayle Y. Iwamasa 8. Ethical Community-Based Research With Hispanic or Latina(o) Populations: Balancing Research Rigor and Cultural Responsiveness - Felipe Gonzalez Castro, Rebeca Rios, and Harry Montoya 9. Ethical Issues in Research With Immigrants and Refugees - Dina Birman PART III. SOCIALLY SENSITIVE RESEARCH INVOLVING ETHNOCULTURAL FAMILIES AND COMMUNITIES 10. Ethical Research With Ethnic Minorities in the Child Welfare System - Katherine Ann Gilda Elliott and Anthony Urquiza 11. With All Due Respect: Ethical Issues in the Study of Vulnerable Adolescents - Ana Marie Cauce and Richard H. Nobles 12. Ethical Research Dilemmas With Minority Elders - Susan Krauss Whitbourne, Joshua R. Bringle, Barbara W. K. Yee, David Chiriboga, and Keith Whitfield 13. Changing Models of Research Ethics in Prevention Research Within Ethnic Communities - Fred Beauvais 14. Ethnographic Research on Drugs and HIV/AIDS in Ethnocultural Communities - Merrill Singer and Delia Easton PART IV. THE RIGHTS AND RESPONSIBILITIES OF INDIVIDUALS, COMMUNITIES, AND INSTITUTIONS 15. Safeguarding Sacred Lives: The Ethical Use of Archival Data for the Study of Diverse Lives - Copeland H. Young and Monica Brooker 16. Ethical Issues When White Researchers Study ALANA and Immigrant People and Communities - Janet E. Helms, Kevin T. Henze, Jackquelyn Mascher, and Anmol Satiani 17. Coda: The Virtuous and Responsible Researcher in Another Culture - Joseph E. Trimble and Gerald V. Mohatt Name Index Subject Index About the Editors About the Contributors

"A timely topic . . . [t]his might be an excellent book as a text for a graduate class. All APA-approved clinical and counseling programs have to teach a class on ethics and this would be a good reader, or supplementary reader, for such a class." -- Ana Mari Cauce In recent years, there has been much criticism in the literature about the development and quality of research in the area of the psychological study of ethnic minority issues. This criticism, whether real or imagined, has nevertheless influenced the kind of research that has emerged during the past few years. This Handbook, edited by Joseph Trimble and Celia Fisher, is, in my opinion, an outstanding response to this criticism. They have provided a book that clearly articulates an important ethical imperative: As the faces of America changes, so too must we as researchers transform our research designs to be more culturally inclusive. This Handbook pokes, prods, and pushes its reader to shift research paradigms, creating for some a dialectical tension that challenges preconceived notions of ethnic minority research. Imagine, as Trimble and Fisher point out, that 'soon the people of America will be better described as America's People of Color.' If such is the case, then those of us who choose to engage in this research must be prepared to acknowledge and understand that as scholars we must lead by example. This Handbook provides the reader with all of the tools to do so and must be taken seriously by all those who want to participate in the conversation. -- Donald B. Pope-Davis, Ph.D.