Prenatal Testing and Disability Rights

IntroductionErik Parens and Adrienne AschPart One: Overview and Context of the ProjectThe Disability Rights Critique of Prenatal Genetic Testing: Reflections and RecommendationsErik Parens and Adrienne AschThe Current State of Prenatal Genetic Testing in the United StatesCynthia M. PowellPart Two: Parenthood, Disability, and Prenatal TestingSomewhere a MockingbirdDeborah KentWhy I Had AmniocentesisMary Ann BailyThe Experience of Disability in Families; A Synthesis of Research and Parent NarrativesPhilip M. Ferguson, Alan Gartner, and Dorothy K. LipskyWays to Limit Prenatal TestingWilliam RuddickDisability, Prenatal Testing, and Selective AbortionBonnie SteinbockTechnology and the Genetic Imaginary: Prenatal Testing and the construction of DisabilityBruce JenningsPart Three: The Messages and Meanings of Prenatal Genetic TestingWhy Members of the Disability Community Oppose Prenatal Diagnosis and Selective AbortionMarsha SaxtonOn the Expressivity and Ethics of Selective Abortion for Disability: Conversations with My SonEva Feder Kittay with Leo KittayThe Meaning of the Act: Reflections on the Expressive Force of Reproductive Decision Making and PoliciesJames Lindemann NelsonAssessing the Expressive Character of Prenatal Testing: The Choices Made or the Choices Made AvailableNancy PressWhy I Haven't Changed My Mind about Prenatal Diagnosis: Reflections and RefinementsAdrienne AschPart Four: Making Policies, Delivering ServicesDrawing Lines: Notes for PolicymakersDorothy C. WertzLine Drawing: Developing Professional Standards for Prenatal Diagnostic ServicesJeffrey R. BotkinPrenatal Genetic Testing and the CourtsPilar N. OssorioReflections from the Trenches: One Doctor's Encounter with Disability Rights ArgumentsSteven J. RalstonWhat Difference the Disability Community Arguments Should Make for the Delivery of Prenatal Genetic InformationBarbara Bowles Biesecker and Lori HambyContributorsIndex