Genetic and Acquired Disorders

Paul C. McCabe, NCSP, is an associate professor of school psychology in the School Psychologist Graduate Program at Brooklyn College of the City University of New York. McCabe is a New York State certified school psychologist, New York State licensed psychologist, and a Nationally Certified School Psychologist (NCSP). He serves on the editorial boards of several publications in school psychology and developmental psychology, and has consulted at state and national levels on issues of early childhood assessment and best practices, pediatric issues in schools, and training in school psychology. McCabe conducts and publishes research in early childhood social, behavioral, and language development and concomitant problems; pediatric school psychology and health issues addressed by schools; and social justice issues in training, especially training educators to advocate for gay, lesbian, bisexual and transgendered youth. McCabe received his PhD in clinical and school psychology from Hofstra University. He holds undergraduate degrees from University of Rochester and Cazenovia College. Steven R. Shaw, NCSP, is an assistant professor in the Department of Educational and Counselling Psychology at McGill University in Montreal, Quebec. He has been a school psychologist since 1988 with clinical and administrative experience in schools, hospitals, and independent practice. He has conducted workshops and consulted with educational policy makers to address the needs of children with borderline intellectual functioning in the US, Canada, Pakistan, Moldova, Poland, India, and Egypt. Shaw conducts and publishes research in behavior and language development in children with rare genetic disorders; resilience factors for children with risk factors for school failure, especially borderline intellectual functioning; and pediatric school psychology and health issues addressed by schools. Shaw received a PhD in school psychology from the University of Florida.

Preface Acknowledgments Part I. Advances in Health Care and Coping with Loss in Schools 1. Advances in Health Care and Medical Science: Presenting New Challenges for Schools - Paul C. McCabe, Steven R. Shaw Advances in Medical Science Increased Survival Rates Greater Specificity of Medical Diagnosis and Treatment Increased Emphasis on Outpatient Care Changing Role of Schools Increase in Pharmacological Interventions Multidisciplinary Approach References 2. Grief and Bereavement: Roles for Educators - Steven R. Shaw, Tiffany Chiu, Khing Su Lin Introduction Background Implications for Educators How to Tell Students about a Death Notification and Announcement Procedures Parent Notification Determine the Degree of Trauma Concerns about Death due to Suicide Educational Strategies Discussion Questions Research Summary Handout-Grief and Bereveament in the Schools Part II. Chromosomal, Genetic, and Metabolic Disorders 3. Rare Chromosomal Disorders - Shohreh M. Rezazadeh, Steven R. Shaw Introduction Background Genetics Evaluation Chromosomal Abnormalities Potential for Intervention Future Work Implications for Educators Educational Strategies Discussion Questions Research Summary Handout-Children with Rare Chromosomal Disorders 4. Phenylketonuria (PKU): Implications for Educators and Schools - Paul C. McCabe, Lindsay Glasser Introduction Background Prevalence, Symptoms and Treatment Cognitive and Neurological Effects Executive dysfunction Maternal Phenylketonuria Timing and Degree of Exposure Implications for Educators Dietary Compliance Educational Strategies Discussion Questions Research Summary Handout-Phenylketonuria (PKU) 5. Genetics of Autism: Theories, Findings, and Implications - Sarah Glaser, Tia Ouimet Introduction Background Knowing Which Families Are At Risk Techniques to Identify Genetic Contributions Known Genetic Causes X-linked genes Chromosomal Duplications Chromosomal Deletions Candidate Genes Multiple Gene Complications and Unknowns Possible Environmental Causes The Role of Genetic Counseling and Testing Implications for Educators Home- and School-based Treatment and Interventions Educational Strategies Discussion Questions Research Summary Handout-The Genetics of Autism 6. The Biology of Shyness - Paul C. McCabe, Sarah Groark, Brian Dalpiaz Introduction Background The Role of the Amygdala Amygdala and Cortisol Levels: The HPA System Psychological and Immune Correlates of HPA Activation Implications for Educators Educational Strategies Discussion Questions Research Summary Handout-The Shyness in Children 7. Families of Children with Genetic Disorders - Jennifer E. Bruce, Sara Quirke, Steven R. Shaw Introduction Background Asking Questions of Professionals Managing Emotional Trauma Stresses Faced by Families of Children with Genetic Disorders Mothers of Children with Genetic Disorders Fathers of Children with Genetic Disorders Marital Stress in Families of Children with Genetic Disabilities Siblings of Children with Genetic Disabilities Increased Responsibilities of Siblings Strengths in Families of Children with Genetic Disorders Family Resilience Positive Changes in Sibling Development Educational Strategies Discussion Questions Research Summary Handout-Helping Families with a Child with a Disability Part III. Acquired Disorders of Childhood 8. Prenatal Alcohol Exposure: Biological and Behavioral Outcomes - Erica J. Deming, Paul C. McCabe Introduction Background Neuroanatomical Effects of Prenatal Alcohol Exposure Alcohol's Effect on the Neocortex, Hippocampus, Cerebellum, and Neurotransmission Neocortex Hippocampus Cerebellum Neuronal level Typical Anatomical Features of Children with Fetal Alcohol Exposure Neurobehavioral Effects of Prenatal Alcohol Exposure Implications for Educators Educational Strategies Discussion Questions Research Summary Handout-Effects of Prenatal Alcohol Exposure on Children 9. Prenatal Exposure to Antidepressants - Paul C. McCabe, Caryn R. Depinna Introduction Background Types of Antidepressants Selective Serotonin Reuptake Inhibitors (SSRIs) Tricyclic Antidepressants (TCAs) Monoamine Oxidase Inhibitors (MAOIs) Untreated Depression Conclusion Implications for Educators Educational Strategies Discussion Questions Research Summary Handout-Information about Prenatal Exposure to Antidepressants 10. Celiac Disease and Youth: Implications for Educators and Allied Professionals - Jessica B. Edwards, Jessica blom-Hoffman, Debra L. Franko Introduction Background Prevalence Symptoms Diagnosis Treatment: The Gluten-Free Diet Issues in the Treatment of Celiac Disease Complications and Consequences of Untreated Celiac Disease Dietary Adherence Barriers to Dietary Adherence Co-morbidity in CD Implications for Educators Strategies to Support Students with CD Support the child with CD Support the adults Dietary adherence Managing pain Toileting needs School absenteeism Psychological treatment and evaluation Educational Strategies Discussion Questions Research Summary Handout-Celiac Disease: Helpful Hints for Educators 11. Post-partum Depression and its Relation to Behavior Problems in Children - Denielle Parente, Paul McCabe Introduction Background Maternal Depression and Childhood ADHD Child-Family Dynamics Implications for Educators Educational Strategies Discussion Questions Research Summary Handout-Identifying and Treating Post-partum Depression 12. Pediatric Responses to Asthma: An Overview for Educators - Adrienne Garro Introduction Background Experience of Symptoms Impact on Student Functioning Psychosocial Implications Implications for Educators Educational Strategies Discussion Questions Research Summary Handout-Pediatric Responses to Asthma 13. Food Allergies and Intolerances: What Educators Need to Know - Doris Paez, Gilliam W. Thomas Introduction Background What is a Food Allergy? How Can an Allergy Cause Death? How Do Food Allergies Develop? Does Food Allergy Management Differ by Developmental Stage? What Social-emotional or Behavioral Issues are Associated with Food Allergies? What is the Status of Research on Causes and Treatments? Implications for Educators Create a Core Team Food Allergy Emergency Plan Storing of Medications Label Literacy Empowering Children with Food Allergies and their Peers Educational Strategies Discussion Questions Research Summary Handout- Successfuly Managing Food Allergies in Childhood 14. Developmental Effects of Type 1 Diabetes - Sarah A. B. Wilson, W. Mark Posey, Elizabeth M. Schnieder Introduction Background Acute Effects Long-Term Effects Physical Effects Cognitive Effects Academic Achievement Social-Emotional Functioning Implications for Educators Educational Strategies Discussion Questions Research Summary Handout-General Information about Type 1 Diabetes Appendix Glossary References Index

"These resources are the answer to the challenge of keeping pace with the evolving field of student support in schools." -- Katy Olweiler, Counselor "This book is a unique and thoughtful volume that provides up-to-date material on diverse disorders in school-age children. Written with the busy educator in mind, the chapters are full of useful information regarding disease impact on educational outcomes, effective classroom interventions, and the current state of research. Discussion questions and handouts are presented with each chapter. I heartily recommend this book for teachers and educational support staff." -- LeAdelle Phelps, Professor "Covers genetic, chromosomal, and metabolic disorders; prenatal exposure to alcohol and antidepressants; and such problems as asthma, food allergies, diabetes, and grief and bereavement. These are some of the issues increasingly faced by school personnel every day. Each topic is treated in the same authoritative, accessible style found throughout the three volumes of this set." -- John E. Desrochers, Editor, Communique