Making Tough Decisions about End-of-Life Care in Dementia
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Making Tough Decisions about End-of-Life Care in Dementia

Making Tough Decisions about End-of-Life Care in Dementia

JOHNS HOPKINS UNIVERSITY PRESSISBN: 9781421426679
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$60.99
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By Anne Kenny
Imprint: JOHNS HOPKINS UNIVERSITY PRESS
Release Date:
Format: PAPERBACK
Dimensions: 216 x 140 mm
Weight: 300 g
Pages: 232

Description

Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage.

In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member's death while managing their own emotional health.

Drawing on stories of families that Dr. Kenny has worked with to illustrate common issues, concerns, and situations that occurs in late-stage dementia, this book includes practical advice about

  • making life-altering decisions while preparing for a loved one's inevitable death
  • medical care, pain, insomnia, medication, and eating
  • caring for the caregiver
  • having conversations about difficult topics with other family members and with health care, legal, and financial professionals

    Concrete to-do lists and lists of important points provide information at a glance for busy caregivers. Each chapter concludes with a list of additional resources for more information and help. Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

    • Preface
    Acknowledgments
    Introduction
    Chapter 1: Understanding the End and the Need for Letting Go
    Chapter 2: Preparing to Let Go: Emotions of Caring
    Chapter 3: Making Decisions for Others
    Chapter 4: Legal Aspects of Decisions
    Chapter 5: Complex Medical Decisions
    Chapter 6: Decisions about Places of Care
    Chapter 7: Changing Care Needs at the End of Life
    Chapter 8: Changing Needs for the Caregiver/Partner at the End of Life
    Chapter 9: Active Dying
    Chapter 10: Afterloss and Adjustment
    Index

    Reviews

    ""The text is enriched with stories of Kenny's own family (her mother died of dementia) and from numerous other patients and families, which brings what she has to say to life. She does not pull any punches about dying and death and all the problems they bring, but she does so in a kind and caring way... I think this book will be very helpful to many people... If your work in palliative care involves significant numbers of patients with dementia, this book will give you plenty to reflect on.""

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