Judith Heumann (Afterword by) Judith Heumann (1947-2023) was an internationally recognized disability rights activist, widely regarded as one of the leaders of the Disability Rights Movement. Judy worked in the Clinton and Obama Administrations, as an advisor at the World Bank, and as a Senior Fellow at the Ford Foundation. Her story is featured in the Oscar-nominated documentary Crip Camp: A Disability Revolution (2020) and her book, Being Heumann: An Unrepentant Memoir of a Disability Rights Activist (2020). She continued to be active until her death at age 75 on March 5, 2023. See https://judithheumann.com/ Mara Mills (Editor) Mara Mills is Associate Professor in the Department of Media, Culture, and Communication at New York University. Mills is cofounder of the NYU Center for Disability Studies and coeditor of Crip Authorship: Disability as Method. Harris Kornstein (Editor) Harris Kornstein is Assistant Professor of Public and Applied Humanities at the University of Arizona. They have published research and essays in Surveillance & Society, Curriculum Inquiry, Wired, and others Faye Ginsburg (Editor) Faye Ginsburg is Kriser Professor of Anthropology at New York University. Ginsberg is cofounder of the NYU Center for Disability Studies and author of Contested Lives: The Abortion Debate in an American Community and coauthor of Disability Worlds. Rayna Rapp (Editor) Rayna Rapp is Professor Emerita in the Department of Anthropology at New York University, and the author of Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America and coauthor of Disability Worlds. Ed Yong (Foreword by) Ed Yong is a science writer. For his coverage of the COVID-19 pandemic, he won the Pulitzer Prize in explanatory journalism, among other honors. He is the author of two New York Times bestsellers: I Contain Multitudes, and An Immense World, which won the Carnegie Medal for Excellence in Nonfiction.
Description
"An exciting, deep, and moving contribution to Disability Studies. How to be Disabled in a Pandemic is a model for real-time pandemic theorizing that includes the most affected-as subjects, interlocutors, collaborators, and authors. This eloquent record of the brutal first years of Covid is set in its early epicenter of New York City. The holdings and methods of this impressive anthology will inform the ways we continue to engage with the critical connections between Covid, illness, disability, and place in the future." * Alexandra Juhasz, Brooklyn College, CUNY * "So many forces want us to forget about the pandemic, that it's over and not a concern anymore. How To Be Disabled In A Pandemic documents the wisdom of disabled oracles who resisted and challenged the system during the first three years of the pandemic in New York City. After reading this book, it'll leave you wondering what could have happened if our ableist society centered disabled people and took them seriously." * Alice Wong, author Year of the Tiger: An Activist's Life *