Researching Health Together

Emily Zimmerman is an associate professor at the Virginia Commonwealth University Department of Family Medicine and Population Health, Division of Epidemiology. She is a senior researcher at the VCU Center on Society and Health, where she is director of community engaged research and qualitative research. She received her M.P.H. from the University of South Carolina, Arnold School of Public Health; Ph.D. in sociology at the City University of New York Graduate Center; and M.S. in social research from Hunter College. Her work focuses on social determinants of health, placed-based determinants of health, and community and stakeholder engagement. She developed the SEED Method for Stakeholder Engagement in Question Development and Prioritization, a multi-stakeholder methodology for involving stakeholders in research development. She also helped to found the Engaging Richmond community-university partnership at VCU in 2011 to identify and address the health priorities of residents in Richmond's East End. Currently, she is partnering with investigators at Virginia Tech, with funding from the Corporation for National and Community Service, to use the SEED Method to develop community action plans to address the opioid crisis in a rural Virginia community.

Foreword - Joe V. Selby Acknowledgments About the Editor Introduction - Emily B. Zimmerman, Thomas W. Concannon Part I: Stakeholder Engagement in Research Topic Identification and Modeling 1. Grassroots to Grasstops: A Stepwise Approach to Identify Community Health Priorities - Ann M. Cheney, Christina M. Reaves, Mary Figueroa, Alejandra Cabral, Greer Sullivan 2. Deliberative Engagement of Communities in Decisions about Research Spending (DECIDERS) - Susan Dorr Goold, Zachary E. Rowe, Karen Calhoun 3. Group Model Building as a Community Engagement Strategy - Faustine Williams, Peter S. Hovmand, Kurt C. Stange 4. The SEED Method: A Multi-level Stakeholder Approach to Research Question Development and Prioritization - Emily B. Zimmerman, Sarah K. Cook Part II: Stakeholder Engagement in Research Design 5. The Community Engagement Studio: Tapping Into the Lived Experience of Community Members to Enhance Research - Yvonne A. Joosten, Tiffany Israel, Leah Dunkel, Jacqueline Sims, Consuelo Hopkins Wilkins 6. The History of PCORnet - Kimberly Marschhauser, Claudia Grossmann, Maryan Zirkle 7. Partners, Not Participants: Engaging Patients in the American BRCA Outcomes and Utilization of Testing (ABOUT) Network - Marleah Dean, Sue J. Friedman, Rebecca Sutphen, Beth Ann Bourquardez Clark, Debra Duquette, Lisa F. Rezende 8. Engagement Methods for Practice-Based Research Networks and the Challenges with Health Information Technology Implementation - Alex Krist, Paulette Lail Kashiri, J. Eric Peele, Gary Iwamoto, Colin Banas, Jon Puro Part III: Implementing Stakeholder-Engaged Research 9. Free Range Humans: Engaging Patients, Practices, Provides, and People on the High Plains - John M. Westfall, Linda Zittleman, Maret Felzien, High Plains Research Network (HPRN) Community Advisory Council 10. Engaging Stakeholders in Implementation of Evidence-Based Programs - Annette Boaz, Allison Metz 11. Communities Engaged and Advocating for Smoke-Free Environments (CEASE) - Payam Sheikhattari, Jummai Apata, Laurie Bezold, Lisa Bleich, Fernando A. Wagner 12. Translating Evidence to Policy: A Case Study of the San Francisco Soda Tax - Roberto Vargas, Casey N. Palmer, James Rouse Iniguez, Paula Fleisher, Christina Goette, Brittni Chicuata, Sarah Campbell Fine, Eric Mar, Vanessa Bohm, Laura A. Schmidt Part IV: Stakeholder Engagement in Health and Health Systems Interventions 13. Comparative Effectiveness Research: Stakeholder Engagement for a Comprehensive Perspective - Kelly Williams, Tracy Carney, Jane Kogan, James Schuster 14. Achieving Patient Centered Health Care Innovation Through Stakeholder Engagement - L. Ebony Boulware, Patti L. Ephraim, Teri Browne, Tara Strigo, Felicia Hill-Briggs, Jamie Green, Chelsie Hauer 15. Community Engagement in an Urban AIAN Community to Address Diabetes Prevention - Lisa G. Rosas, Jan J. Vasquez, Jill Evans, Rhonda McClinton-Brown, Alberto Ojeda, Matilda Owaleon-Ojeda, Wayne Scott Waters, Robert E. Garcia 16. Boot Camp Translation - Linda Zittleman, Ashley Espinoza, John M. Westfall Part V: Governance, Evaluation, And Ethics In Stakeholder-Engaged Research 17. Building the Proper Foundation: Governance for Stakeholder-Engaged Research - Holly L. Peay, Elizabeth L. Cope, Elizabeth Horn, Madelaine E. Faulkner, Thomas W. Carton, Megan O'Boyle, Lorraine B. Johnson 18. Evaluating Engagement: Does the involvement of stakeholders improve research? - Thomas W. Concannon 19. Collaborating to Evaluate: The Si Texas Partnership-Centered Evaluation Model - Michelle K. Brodesky, Karen Errichetti, M. Marlen Ramirez, San Juana Martinez-Gomez, Stephanie Tapia, Lisa Wolff, Mary V. Davis 20. Ethics Considerations When Involving Patients as Partners in Health Research - Donald J. Willison, Michael McDonald Acronyms Glossary Index About the Contributors

An important text presenting the interface between community engagement and translational research. Well-researched and written chapters packed with up to date and revealing information on an important topic. -- Lutchmie Narine * review * This is an impressive, comprehensive, and up-to-date volume on community engagement in health research. Drawing upon diverse conceptual models and empirical case studies, this book offers exciting, cutting-edge ideas in this rapidly growing field. A must-have for researchers and practitioners. -- Jennifer Chan * Review * The book provides a coherent narrative through a progression of "building blocks" for understanding how research and policies can interface to benefit the quality of life of individuals and entire communities. -- Marcello Maviglia * Review * This book is an amazing compendium of current methods for improving stakeholder engagement in research. Here readers can see different strategies working in different populations, for their own use. -- Deborah J. Bowen * Review *