Acknowledgements. Foreword. Preface.; Chapter 1. Three Stories.; Chapter 2. Diagnosis and Treatment.; Chapter 3. Truth-Telling and Understanding.; Chapter 4. Family and Friends.; Chapter 5. Inexperienced Carers.; Chapter 6. Dependent Lives.; Chapter 7. Resilience.; Chapter 8. Dying and Beyond.; Chapter 9. Imagining the Future.; Appendix 1. The people in this Book.; Appendix 2. Methods. References.
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`This book is an account of vulnerable people with deteriorating health, made more vulnerable by their illness, struggling in an often insensitive system...Loss is an inevitable part of life for all of us but this book outlines the impact of loss on people with learning disabilities, often in devastating and subtle ways...I found it a very accessible book: its key element was that the research is presented in readable, detailed accounts of her observations over time as each person's illness progressed. This personal notebook, which relates her inner thoughts, doubts, confusion and sadness over people's pain, was very moving. The fact that at times she could not help and yet she was able to stay with that discomfort rather then cover it up is commendable, reading like a good psychotherapy session...I was surprised as I did not expect to be so affected by this book, nor to learn so much from it. I think the highest praise I can give Tuffrey Wijne is to say it is to my mind the seminal work on the learning disability and loss. I certainly hope it gets a wider audience outside the learning disability field, hopefully in the National Health Service.`
Community Living, David O'Driscoll
'This book will be an invaluable resource for anyone involved in the care and support of people with learning disabilities who are facing cancer or other life-threatening illnesses. And it also includes a helpful resource section at the end of the book.'