Foreword. Preface. 1. Background and Emerging Diagnosis. 2. Putting the Pieces Together: Making Sense of the Nonsensical. 3. Accessing Appropriate Diagnosis (And what does that truly look like?). 4. Appropriate Medical Treatment and Intervention. 5. Appropriate Supportive Therapeutic Intervention One: Nutrition. 6. Appropriate Supportive Therapeutic Intervention Two: PT/OT. 7. Appropriate Supportive Therapeutic Intervention: Counseling and Therapy. 8. Fostering Coping Strategies and Stress Management, for the Entire Family. 9. Navigating the Necessities of Life: Accommodations for Education and Activities. 10. Case Studies and Stories. 11. Case Study - How to Be a Zebra. Appendices. Resources for family, individual, and community support. References.
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Description
Kelly McCracken Barnhill has created an easy-to-understand handbook that is suitable as a reference resource for medical professionals, parents, and patients. She has been successful in demystifying this complex syndrome through the use of well-researched explanations of up-to-date testing and discussions of treatment options presented in the crucible of first hand patient accounts. The reader will find this an invaluable guide through the maze of dysautonomia.