Introduction: Kathy, this book is not... this book is for... Part 1 Learn about me: diagnosis and first contact with doctors and hospitals. Part 2 Tell them about me: the care book. Part 3 We need to communicate: why do we need to communicate?; diaries; medication; information sheets; writing to people; telephoning; talking to people; in nursery, school or centre; leisure activities; respite and residential services; independent living arrangements; mobility, equipment and adaptations; benefits; families and friends; the future - wills, trusts and guardians. Part 4 Doctors and hospitals: your GP; in casualty; in hospital; things can only get better - or can they? Conclusion: who cares? Facing up to reality and difficult decisions.
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Description
The book is, I believe, modern in concept and in its argument. Pat Fitton gives us a thoughtful and clear account of what is demanded of the parent and carer, and also of what they might reasonably expect our education, welfare benefits, health, leisure and social services to provide when someone has a disability... very moving and very informative at the same time: it is difficult to recall many books which have such a powerful effect... An important source of support mentioned by many parents is the information, advice and empathy received from other parents and carers. Listen to Me is a major contribution to that tradition of mutual support and understanding.