Dementia

About the authors; Abbreviations SECTION 1: Introduction 1. Introduction to the book Amy Pepper 2. What is dementia? Karen Harrison Dening 2.1 Introduction 2.2 Causes of dementia 2.3 Symptoms of dementia 2.4 Alzheimer's disease 2.5 Vascular dementia 2.6 Dementia with Lewy bodies 2.7 Frontotemporal dementia 2.8 Risk factors for dementia 3. Person-centred care and dementia Amy Pepper 3.1 Person-centred care and dementia 3.2 Criticisms of the model 3.3 So what is person-centred care? 3.4 The importance of knowing the person 3.5 Positive person work and malignant social psychology 3.6 From person-centred to relationship-centred: evolving models of care SECTION 2: The dementia care pathway 4. Diagnosis of dementia Karen Harrison Dening 4.1 Introduction 4.2 Ruling out conditions that can mimic dementia 4.3 Mild cognitive impairment 4.4 Why diagnose dementia? 4.5 What does an assessment for dementia involve? 4.6 Giving a diagnosis of dementia 4.7 Prognosis of dementia 5. Medications used in dementia and their management Karen Harrison Dening 5.1 Introduction 5.2 Treatment of the cognitive symptoms of dementia 5.3 Using AChEIs in clinical practice 5.4 Risks and benefits 5.5 Treatment of the non-cognitive symptoms of dementia 5.6 Treatment of other medical conditions that occur alongside dementia 6. Post-diagnostic support for people with dementia and their carers Amy Pepper 6.1 Introduction 6.2 What does good post-diagnostic support look like? 6.3 Understanding and managing dementia 6.4 Psychological and emotional wellbeing 6.5 Practical support 6.6 Planning for the future 7. Assessment for care and support Amy Pepper 7.1 Social care 7.2 The Care Act and the role of the local authority 7.3 The assessment process 7.4 The eligibility criteria 7.5 The financial assessment 7.6 Support for 'self-funders' 7.7 The carer's assessment 7.8 Types of care 7.9 NHS continuing healthcare 7.10 The experience of navigating the care and support system 7.11 Differences in social care in other areas of the UK 8. End-of-life care and dementia Emma Wolverson 8.1 Introduction 8.2 The importance of early conversations about dying 8.3 Recognising end-of-life signs 8.4 Best practice in end-of-life care for people with dementia and their families 8.5 Caring for the person in the final days 8.6 Bereavement support SECTION 3: Common issues in dementia care 9. Communication and dementia Amy Pepper 9.1 Introduction 9.2 Communication and the brain 9.3 Verbal and non-verbal communication 9.4 Difficulties with communication in dementia 9.5 Person-centred care and communication 9.6 Things to think about when we are communicating with someone with dementia 9.7 The VERA framework 9.8 Communication and family carers 10. Capacity and decision-making in dementia Karen Harrison Dening 10.1 Introduction 10.2 Decision-making 10.3 Decision-making capacity 10.4 What we mean by the terms capacity and competency 10.5 Mental Capacity Act 2005 10.6 Fluctuations in capacity 10.7 Best interests decisions 10.8 Shared decision-making 10.9 Lasting powers of attorney 10.10 Deputyship 11. Risk and dementia Amy Pepper 11.1 Introduction 11.2 What is risk? 11.3 Risks in dementia 11.4 Risk enablement 11.5 A risk assessment and management framework 11.6 Risk management 11.7 Safeguarding 12. Distress in dementia Emma Wolverson 12.1 Introduction 12.2 What do we mean by distress? 12.3 Distressed behaviours 12.4 The language used to talk about distressed behaviours 12.5 What do we mean by unmet needs? 12.6 What causes distress in people with dementia? 12.7 Assessment 12.8 Non-pharmacological approaches 12.9 The impact of distress on staff 13. Delirium and dementia Karen Harrison Dening 13.1 Introduction 13.2 What is delirium? 13.3 Types of delirium 13.4 Supporting people with delirium and dementia 13.5 Delirium and dementia 13.6 How do we diagnose delirium? 14. Dementia and other health conditions Karen Harrison Dening 14.1 Introduction 14.2 What do we mean by comorbidity and multimorbidity? 14.3 Comorbidities and dementia 14.4 Diagnostic overshadowing 14.5 Frailty 14.6 Management of comorbidities in dementia 14.7 Cancer 14.8 Pain 14.9 Sensory impairments 14.10 Mental health and dementia 14.11 Depression and anxiety 15. Supporting family carers Tia Cheung-Cook 15.1 Introduction: families and dementia 15.2 Carers 15.3 What types of support do family carers give? 15.4 The impact of caring for someone with dementia 15.5 Supporting carers 16. Ethical issues in dementia care Amy Pepper 16.1 Introduction 16.2 What do we mean by ethics and ethical practice? 16.3 Ethical frameworks 16.4 Therapeutic lying 16.5 The use of assistive technology 16.6 Sexuality and dementia 17. Dementia policy and guidance Karen Harrison Dening 17.1 Introduction 17.2 Historical roots to present policy 17.3 The drive for reducing the risk of a person developing dementia 17.4 Dementia care policy and guidance - a brief history 17.5 Dementia - the 'well' pathway 17.6 Dementia policy in the future 18. Research and people with dementia Emma Wolverson 18.1 Introduction 18.2 The importance of healthcare research 18.3 The research landscape in dementia 18.4 Priorities for dementia research 18.5 Why does research matter to people with dementia? 18.6 The rold of staff in supporting research in dementia 18.7 Where to signpost people to 18.8 Getting involved in research 19. Future challenges in dementia care Madeleine Walpert 19.1 Introduction 19.2 The rising prevalence of dementia 19.3 Disease-modifying treatments 19.4 Future of diagnosis 19.5 Inequalities 19.6 Technology and digital health advancements 19.7 Changes in healthcare delivery and models Index